Neglected by Governments and ignored by Health Professionals – the Prefect Storm in Systemic Health Care Failure !
by Sasha Nimmo
Up to 240,000 Australians have Myalgic Encephalomyelitis. ME may be mild, moderate or severe. More than 25% of people affected are housebound or bedbound, and research shows that people with severe ME have a quality of life similar to those with cancer and late-stage AIDS. Worsening of symptoms can be sudden and permanent. One Australian has died from ME and the Alison Hunter Memorial Foundation was established in her honour. The most common cause of death in ME is heart failure; where the average age of death from heart failure is 83.1 in the general population, it is 58.7 for ME patients.
Myalgic Encephalomyelitis is classified as a neurological disease by the World Health Organisation, the same category as multiple sclerosis and Parkinson’s disease. ME affects the:
- Brain
- Endocrine system
- Muscles
- Digestive system
Diagnosis and the name ‘chronic fatigue syndrome’
The name Myalgic Encephalomyelitis has been…
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